Every Friday I open up a discussion topic and ask for your recommendations, experiences, questions, or general feelings on a specific topic.
These Threads are a way to share your knowledge and meet other people in the community, so please comment and feel free to like and reply to other people as well - we’re all here because we are in the Rosacea Club! 🧡
I have been diagnosed with rosacea for over a year now but thinking back, I’ve probably had it for as long as I can remember but just never put two ans two together, I am currently using Fineaca azelaic acid 15%. I don’t know anyone else with it, feels like I am so alone sometimes and I feel embarrassed telling people, even friends so I keep it to myself as I feel like if you do not have rosacea then you can’t fully understand how it actually make you feel.
I know exactly what you mean, it can be such an isolating condition. I really hope that you can find support and community here, we all know what you're going through so you can always come and talk to us x
Awe Lucy I really feel for you. I know exactly how you feel. I’m now 58 and have had rosacea since 1998. As I’ve got older I’ve lost the embarrassment of telling people and I just say it if I feel I have to. It is difficult though as you say,people really don’t understand unless you experience it yourself x
I feel really alone with my condition. I don't know anyone who has rosacea. First time I heard about this condition when I was diagnosed with it over 10 years ago. I didn't know anything about it. I didn't have any support from anyone. Was so hard to learn about this condition, took me over 10 years to know the basics and I still learn every time I read other people's comment and advise.
Often ( especially during my bad days when my face is red, hot and swollen ) I feel like I am the only person who knows what is going through.
I still didn't accept my condition and feel very sad and hoples.
I'm so sorry to hear that, I have been exactly where you are. That's what inspired me to start talking about it so publicly, and to start trying to build a community to help so that no one else ever had to feel like that. I really hope you can find support and compassion here and on my other platforms - we are all here because we're in the club x
I'm so sorry that you had to hear such horrible experiences with teasing and awful misconceptions about alcoholics. It's part of the reason I try to raise awareness with the general public, because these kind of assumptions can be so damaging.
That's so interesting, I love hearing about people who were aware of rosacea before diagnosis. That means all the work of raising awareness has helped! x
I had heard of rosacea before my diagnosis in 1998, but I still don’t know anyone else in my circle who has it. My friend who is a beauty therapist understands it, and it was her that told me back in 1998 that she thought I had it, which my GP then confirmed.
I find nobody really cares, because it doesn’t affect them - I work in an office with a “hot air” central heating system - it’s brutal!! My face stings most of the day. I can deal with the redness, but when I have a breakout I reach for lymecycline which works for me within a few days. I haven’t found any gels or creams that agree with me 😊
That's so lucky that you had a knowlegable friend to help! I know what you mean, people can be so inconsiderate. The amount of times I asked to move desks because I was placed directly under the central heating or next to a huge window and people just stare at you like you've fallen out of a tree!
I have been diagnosed with rosacea for over a year now but thinking back, I’ve probably had it for as long as I can remember but just never put two ans two together, I am currently using Fineaca azelaic acid 15%. I don’t know anyone else with it, feels like I am so alone sometimes and I feel embarrassed telling people, even friends so I keep it to myself as I feel like if you do not have rosacea then you can’t fully understand how it actually make you feel.
I know exactly what you mean, it can be such an isolating condition. I really hope that you can find support and community here, we all know what you're going through so you can always come and talk to us x
Awe Lucy I really feel for you. I know exactly how you feel. I’m now 58 and have had rosacea since 1998. As I’ve got older I’ve lost the embarrassment of telling people and I just say it if I feel I have to. It is difficult though as you say,people really don’t understand unless you experience it yourself x
thank you for offering your support and kindness, Frances x
I feel really alone with my condition. I don't know anyone who has rosacea. First time I heard about this condition when I was diagnosed with it over 10 years ago. I didn't know anything about it. I didn't have any support from anyone. Was so hard to learn about this condition, took me over 10 years to know the basics and I still learn every time I read other people's comment and advise.
Often ( especially during my bad days when my face is red, hot and swollen ) I feel like I am the only person who knows what is going through.
I still didn't accept my condition and feel very sad and hoples.
I'm so sorry to hear that, I have been exactly where you are. That's what inspired me to start talking about it so publicly, and to start trying to build a community to help so that no one else ever had to feel like that. I really hope you can find support and compassion here and on my other platforms - we are all here because we're in the club x
You are inspiration to many people, not only those who has rosacea.
Thank you very much for everything you do for others ❤️ 😊
That's such a lovely thing to say, thank you x
I don't know anyone else with Rosacea. My doctor diagnosed me over e-consult by looking at a photo so I wasn't given any information.
I've always been teased for blushing so easily and now I know why.
I was always told that people with red cheeks and red enlarged noses were alcoholics.
I'm so sorry that you had to hear such horrible experiences with teasing and awful misconceptions about alcoholics. It's part of the reason I try to raise awareness with the general public, because these kind of assumptions can be so damaging.
I had heard of rosacea before being diagnosed & remember thinking yikes that sounds bad. I don't know anyone else with rosacea though.
That's so interesting, I love hearing about people who were aware of rosacea before diagnosis. That means all the work of raising awareness has helped! x
I had heard of rosacea before my diagnosis in 1998, but I still don’t know anyone else in my circle who has it. My friend who is a beauty therapist understands it, and it was her that told me back in 1998 that she thought I had it, which my GP then confirmed.
I find nobody really cares, because it doesn’t affect them - I work in an office with a “hot air” central heating system - it’s brutal!! My face stings most of the day. I can deal with the redness, but when I have a breakout I reach for lymecycline which works for me within a few days. I haven’t found any gels or creams that agree with me 😊
That's so lucky that you had a knowlegable friend to help! I know what you mean, people can be so inconsiderate. The amount of times I asked to move desks because I was placed directly under the central heating or next to a huge window and people just stare at you like you've fallen out of a tree!
How long have you been using the gel? I use the cream and have been on the same tube since May. I don't use much but it really makes a difference
Thanks Barbara. That's good to know
Just jumping in here to say how much I'm loving the helpful chat in these comments. It makes me so happy! Thank you x